Spina Bifida: Resource List
Books for Children
Ages 9 to 12
- All Kinds of Friends, Even Green!; by Ellen Senisi; Woodbine House, 2002
- Featherless; by Juan Filipe Herrera; Children's Book Press, 2004
Young Adult
- Spinabilities: A Young Person's Guide to Spina Bifida; by Marlene Lutkenhoff; Woodbine House, 1997
Books for Adults
- Children with Spina Bifida: A Parent's Guide; by Marlene Lutkenhoff; 2nd ed., Woodbine House, 2008
- Living With Spina Bifida: A Guide For Families and Professionals; by Adrian Sandler; University of North Carolina Press, 1997
Other Resources
Spina Bifida Association of America
4590 MacArthur Blvd., Ste 250
Washington, D.C. 20007
202-944-3285
1-800-621-3141
Email: sbaa@sbaa.org
http://www.sbaa.org
Its mission is to promote the prevention of spina bifida and to enhance the lives of all affected. SBAA provides many services, such as: Toll Free 800 Information and Referral Service, Bi-monthly Newsletter, Publications, Scholarship Fund, Public Awareness Campaigns, and Member Services.
National Information Center for Children and Youth with Disabilities
P.O. Box 1492 Washington, DC 20013
1-800-695-0285
Fax: 202-884-8441
E-mail: nichcy@aed.org
http://www.nichcy.org
National information and referral center that provides information on disabilities, and disability-related issues for families, educators, and other professionals. Its special focus is children and youth (birth to age 22).
